Absent staring episodes

Discuss general parenting issues here.

Absent staring episodes

Postby mummymanda » Mon Jul 04, 2016 10:43 am

Does anyone have experience with "absent episodes" with an 11y.o girl? About 2 months ago DD1 experienced quite a few episodes where she "went blank" for a few seconds and was un responsive. These were all at school usually after some kind of physical activity. Only her friends and peers have witnessed them. Usually headache or dizzyness has followed. Was over about 3-4 days and she has had some random ones since.

We went to GP and emerg at hospital. Seen size clinch and had an EEG. Only outcome is that "kids stare" pinch her next time. I would kind of understand that if she was younger and wanted attention but she has been pretty scared of it all. I bought up hormones too and it possibly being catamenial but apparently it's not.

Any thoughts? I am looking to take her to a Chinese medicine clinic that has a training facility near us and osteopathic clinic. My Aunty has offered to take her to her very expensive naturopath but I know DD will not take the strong flavor medicine.
Image
Image
Image
Image
User avatar
mummymanda
 
Posts: 3214
Joined: Thu Jun 05, 2008 3:20 pm
Location: Lalor

Re: Absent staring episodes

Postby Baby Blue Eyes » Mon Jul 04, 2016 12:00 pm

they possible could be Absence Seizures. ds3 had some as a baby in response to rapid temperature increases.

http://www.epilepsy.com/learn/types-sei ... e-seizures
DS1 - b/f 4 yrs
DS2 - b/f 3yrs 11mths
DS3 - B/F 4yrs 10 mths
Image
User avatar
Baby Blue Eyes
 
Posts: 13910
Joined: Wed Jan 31, 2007 5:46 pm
Location: Atherton Tablelands

Re: Absent staring episodes

Postby Marg » Mon Jul 04, 2016 12:27 pm

Sounds like absence seizures to me - my daughter had them until she was on the correct medication - feel free to PM me if you'd like to chat about it.
Mum to Monkey 15 (BF 2y2m), Possum 14 (BF1y2m) & Cupcake 12 (fully weaned at 5 1/2)
User avatar
Marg
Community Educator
 
Posts: 3234
Joined: Thu Jan 12, 2006 5:59 pm
Location: Sydney

Re: Absent staring episodes

Postby pseudo » Mon Jul 04, 2016 12:37 pm

Yes my best friend started having absence seizures in year 3. She did take medication but grew out of the seizures.
Image

Image

Storked by the lovely Lu!
pseudo
 
Posts: 2258
Joined: Sat Oct 29, 2011 7:36 pm
Location: Adelaide

Re: Absent staring episodes

Postby Nedsmum » Mon Jul 04, 2016 5:55 pm

If it is epilepsy, stress can make it worse. Without a proper diagnosis I wouldn't start going down the alternative medicine route (and paying a lot of money) for something that is undefined and you haven't actually witnessed, and is not harmful to her. Maybe take a diary of what has happened, and if you notice it at home...

The 'pinch her' advice may actually be good advice, even though it sounds silly. A friend of mine had genuine epilepsy so even if you did pinch her, she wouldn't be able to come back to consciousness. There are two main forms of epilepsy and one of them is the 'absent' type.

Could it just be that she's anxious, having minor blood sugar or dehydration reactions (dizzyness?) or fainting sort of feelings ?

If you can catch her doing it on video, that would probably be good. It could just be attention seeking type behaviour, although I would tend to assume that after double-checking everything else.

Did the teacher witness it ?
Breastmilk - the ultimate 'brain food'!!!
User avatar
Nedsmum
 
Posts: 9548
Joined: Tue Jan 29, 2008 10:36 am
Location: Switzerland

Re: Absent staring episodes

Postby mummymanda » Mon Jul 04, 2016 9:53 pm

Any form of or siezure or epilepsy has been ruled out. I first bought all that up with specialist. EEG has ruled it completely out and they will not look into it further.

The worst one her friend shook her and called her and it took a while for her to respond. She is definately not seeking attention as she has had a few of her friends call her out quite negatively on it and that upset her. No adult has yet to witness one but several different friends have.

Hopefully they will just fade out and not happen again and just be one of those things. I have recorded them on an app so we will see.
Image
Image
Image
Image
User avatar
mummymanda
 
Posts: 3214
Joined: Thu Jun 05, 2008 3:20 pm
Location: Lalor

Re: Absent staring episodes

Postby pseudo » Tue Jul 05, 2016 3:04 pm

Something I've learned recently is that second opinions can be very helpful. Can you get a referral to another neurologist?
Image

Image

Storked by the lovely Lu!
pseudo
 
Posts: 2258
Joined: Sat Oct 29, 2011 7:36 pm
Location: Adelaide

Re: Absent staring episodes

Postby wilfred » Tue Jul 05, 2016 6:55 pm

This is the form of epilepsy that I have. Before I have an episode I get a strange feeling of déjà vu, apparently that is quite common. It's a weird feeling maybe get her to your go for some scans and a referral to a neuro. Good luck keep us updated. I forgot to mention... I had these for years and no one took it seriously, it wasn't til I was pregnant with DS2 that I had my first grand mal seizure. Get a second opinion.
Me: 38
DH: 38
DS1: 11.5 bf for 6 weeks
DD1: 8.5 bf for 13 weeks
DS2: 6.5 bf for 26 months
DD2: 4 bf for 3 yrs and 2 weeks
User avatar
wilfred
 
Posts: 1213
Joined: Wed Jul 07, 2010 10:17 pm
Location: Sydney

Re: Absent staring episodes

Postby mummymanda » Wed Jul 06, 2016 6:46 pm

As the EEG the was normal there are no other testing methods suitable. We saw the top neuro at the hospital and she was fast tracked due to my instence and sitting in ED over 2 days for 10 hrs. She has no dejavu type feelings only after the fact when her friends say what happened then she is dizzy and gets a headache.

I think if she has another cluster I will try the other hospital. She had the strobe test and hated it but apparently that is normal. I am usually very much the get many opinions person but it's hard when you are told there is no other form of testing that will get results. I was even denied getting any blood work as no blood related things present in that fashion and I asked 3 different people.
Image
Image
Image
Image
User avatar
mummymanda
 
Posts: 3214
Joined: Thu Jun 05, 2008 3:20 pm
Location: Lalor

Re: Absent staring episodes

Postby Bailey's Mum » Fri Jul 08, 2016 5:36 pm

If seizure activity has been ruled out, my personal experience would suggest anxiety or introversion - I can appear absent at times, when really, I've just shut the front door (for all sorts of reasons - mostly overtired, etc). Knowing the journey you've had with your DD, could I suggest having a chat with a paed or psych?

Actually, reading wilfred's post makes me wonder if mine ARE seizures - I, too, get a weird deja vu feeling, which I remember describing to a dr when I was about 9 or 10 as fuzzy hearing - everything sounds like it's under water, and then it starts to fade to nothing. :?
DS1 born sleeping
DS2 BF 2y2m (using supply line)
DS3 BF 2y2m2w2d (because we like patterns - 9 months with SNS)
DS4 BF 3y10m3w4d (8 months with SNS)
Bailey's Mum
Counsellor
 
Posts: 17985
Joined: Sun Sep 11, 2005 4:23 pm

Re: Absent staring episodes

Postby wilfred » Fri Jul 08, 2016 10:40 pm

When I had the EEG the results were normal. It was only after I had both an MRI and CT scan that the diagnosis was made. In my case I had scarring on my frontal lobe caused by convulsions I had as a child.
Me: 38
DH: 38
DS1: 11.5 bf for 6 weeks
DD1: 8.5 bf for 13 weeks
DS2: 6.5 bf for 26 months
DD2: 4 bf for 3 yrs and 2 weeks
User avatar
wilfred
 
Posts: 1213
Joined: Wed Jul 07, 2010 10:17 pm
Location: Sydney

Re: Absent staring episodes

Postby mummymanda » Fri Jul 08, 2016 10:53 pm

Hmm interesting thanks for all your input. Chinese herbalist was unhelpful but the Osteopath was great for a lot of reasons and think they can at least help with her gross motor stuff. She is seeing a psych at the moment and she knows about everything and has been talking to her about it. DD says she has no premonition at all and wouldn't even know she has had one but for her name being called over and over/being shaken/headache afterwards. It's just a time of nothingness not even black just a nothing period of seconds.
Image
Image
Image
Image
User avatar
mummymanda
 
Posts: 3214
Joined: Thu Jun 05, 2008 3:20 pm
Location: Lalor

Re: Absent staring episodes

Postby pseudo » Fri Jul 08, 2016 10:58 pm

Hi mummymanda. My brother has epilepsy and his EEG was normal. Ask for a referral to a neurologist and they will do an MRI. Just because the EEG was normal, it doesn't mean there isn't an issue. It's very common for EEGs to be normal.
Image

Image

Storked by the lovely Lu!
pseudo
 
Posts: 2258
Joined: Sat Oct 29, 2011 7:36 pm
Location: Adelaide

Re: Absent staring episodes

Postby Marg » Sat Jul 09, 2016 7:56 am

I know with my DD2, she didn't have any of the deja vu or dizziness that some people experience when they have absences. With her, her only knowledge that anything had happened was that people were sometimes looking at her or calling her name, trying to rouse her. She missed quite a lot in school because of absences.

What happens if you ask your daughter to hyperventilate? It can be a classic way to bring on an absence seizure.

Between having an EEG and the MRI, my DD's paediatrician asked her to hyperventilate and within 3 or 4 breaths she had an absence (he said he had never seen it happen so quickly).
Mum to Monkey 15 (BF 2y2m), Possum 14 (BF1y2m) & Cupcake 12 (fully weaned at 5 1/2)
User avatar
Marg
Community Educator
 
Posts: 3234
Joined: Thu Jan 12, 2006 5:59 pm
Location: Sydney

Re: Absent staring episodes

Postby mummymanda » Sat Jul 09, 2016 10:48 am

Marg wrote:I know with my DD2, she didn't have any of the deja vu or dizziness that some people experience when they have absences. With her, her only knowledge that anything had happened was that people were sometimes looking at her or calling her name, trying to rouse her. She missed quite a lot in school because of absences.

What happens if you ask your daughter to hyperventilate? It can be a classic way to bring on an absence seizure.

Between having an EEG and the MRI, my DD's paediatrician asked her to hyperventilate and within 3 or 4 breaths she had an absence (he said he had never seen it happen so quickly).


Yes the neuro asked her to blow a spinning fan for 2 minutes and she did this but rather awkwardly. I was hoping that this would bring one one as I had read up on that test prior (while sitting in ED for 10 hrs). All of her episodes have been following sport of some description down ball/soccer/lawnbowls at recess and lunch. Funny though that her swimming class did not bring one on though.

I just asked her if there was possibly a reason she had a cluster and she said it was the week that half her year level were on camp therefore she had more turns at sport. We are doing garden work today so I have challenged her to do lots of running around etc see what happens I want to get to the bottom of this before high school. Think I will speak to the GP about getting a referral to the other hospital with similar services.
Image
Image
Image
Image
User avatar
mummymanda
 
Posts: 3214
Joined: Thu Jun 05, 2008 3:20 pm
Location: Lalor

Next

Return to Parenting in general

Who is online

Users browsing this forum: No registered users and 4 guests

cron